Welcome

to Hannah's blog. Hannah, a happy healthy 7 year old was diagnosed on January 30, 2007 with medulloblastoma, a malignant brain tumor.

It's new

I know it's new, and lots of junk still here, but it's a new template I'm trying out. Still lots of work to do, we'll see!!

Friday, April 6

Today was treatment #22 and a very busy day for Hannah. After treatment and therapy in the morning, Hannah had a neuropsych appointment with a neurological psychologist. This appointment was testing to provide a baseline for Hannah's cognitive abilities. She had a full 3 hours of testing including reading, writing, problem solving, math, and more. Research shows that whole brain radiation therapy, like Hannah had, is associated with cognitive decline. This is especially true in children below 7 years of age, who experience a very significant loss of function after whole brain radiation therapy, so Hannah is on the borderline. This was one of the reasons we chose proton radiation over traditional radiation, to hopefully minimize cognitive loss, among other things. She will be tested several more times in the next several years to monitor her cognitive abilities as compared to her baseline results.




After the looooong test, we came back to the holiday party at the rehab hospital. Here is Hannah painting eggs with Grandma and Colby. Boy was that fun! Here is Hannah's new dance partner, the biggest Easter Bunny ever! With straps on the feet that allow him to dance with Hannah, it is great and Hannah has really enjoyed him. Hannah is having a great time with all of her visitors! XOXO Kim

2 comments:

  1. Anonymous said...
     

    Hello Hannah,
    We want to wish you a very Happy Easter! Hope the Easter bunny was good to you. Happy Easter to mommy, daddy, Colby, grandma and grandpa too!

    Love Uncle Mike, Aunt Paige, Kate and Lynsey

  2. Anonymous said...
     

    Kim & Hannah,

    Curious - what was the name of the neuropsychologist?

    We check your blog daily, pray for you nightly, and love you dearly.

    Your St. Louis Family!!! XXOOXX
    Annie (Ray and Lexi)

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