Welcome

to Hannah's blog. Hannah, a happy healthy 7 year old was diagnosed on January 30, 2007 with medulloblastoma, a malignant brain tumor.

It's new

I know it's new, and lots of junk still here, but it's a new template I'm trying out. Still lots of work to do, we'll see!!

Thursday, April 19

Yes, we're finally home! Our trip home was so much different than the horrible trip up to Boston. Hannah fell asleep about 15 minutes outside of the city, and awoke in the drive thru of McDonald's asking for a happy meal. She was so excited as we pulled into the driveway. Colby, Grandma, Grandpa and Riley were awaiting our arrival with ballons and banners everywhere. Hannah was squealing in delight as we got of the car and started up the walk. Colby has been hugging and hugging her since we got home and I thought Riley was going to flatten her he was so excited.

Since we have been home she has been quite mobile inside the house. She can negotiate from one room to the other without any problems, there seems to be enough to hold onto to help her keep her balance. I did notice her trying to whip herself around the corner into the hallway and almost fall down, so I just try to remind her to take it slowly. She really enjoys being able to walk somewhere by herself.

Today was our first full day home and she was busy from the time she woke up. She started with 2 hours of horseopoly (after Grandma's pancakes), then it was cards and a puzzle and 2 minutes of the Yankees game, then more cards and crafts and quite a bit of time outside. It was very nice outside, so she enjoyed a couple hours outside.

Tomorrow she has her first physical therapy appointment and evaluation. Monday she will go to school to meet with her class, and possibly stay for a half day of school. She will continue with half days as long as she feels up to it. As the time goes on, she will feel more fatigued from the effects of the radiation, even though it is over. We're told that will most likely hit her the hardest about 30 days post radiation, and last about 2 weeks, just in time for her to start her chemo. We're just taking it day by day right now, and will follow her lead on how much she can and wants to do.

Good to be home, that's for sure...xoxo Kim

4 comments:

  1. Anonymous said...
     

    Hannah! So glad you are home!! I am Joke, the girl from Amsterdam (and a FOAL!). I just wanted to check in on how you are doing.

    For the record, I have no idea what Webkinz is, but maybe we don't have that in the Netherlands?

    I hope you have fun at school! It must be fun to see your friends again, and I think your friends will learn a lot by hearing you talk about your journey the past few weeks.

    I like to keep seeing that smile!

    Cheers,
    Joke

  2. Anonymous said...
     

    Hi Hannah, We are glad you guys are home. We can not wait to see you guys, We think and pray for you guys everyday, Love Sue and Tom

  3. Anonymous said...
     

    Welcome back to New York Hannah and Kim! We should’ve guessed spring would arrive as soon as you returned!
    Love,
    Julianne
    (Friend of Aunt Liza)

  4. Anonymous said...
     

    Hi - Terrific to hear that you're back home!
    All the best,
    Steve and Betsy I

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