Welcome

to Hannah's blog. Hannah, a happy healthy 7 year old was diagnosed on January 30, 2007 with medulloblastoma, a malignant brain tumor.

It's new

I know it's new, and lots of junk still here, but it's a new template I'm trying out. Still lots of work to do, we'll see!!

Tuesday, July 24, 2007

I have marked our chemo schedule as DONE WITH ROUND 4! We just received the all clear to go home and we'll leave around 4pm, when she is done with hydration. This round has gone very well for us, nothing crazy to report and we love that! She is tired and a bit run down, as a product of the chemo, but that is much easier to deal with than the nausea and vomitting.

She will have a lot of work to do with physical and occupational therapy when she gets home. Whenever she has her port accessed, she walks humped over with her left shoulder slumped way down, like a little old lady because she says it hurts to stand up straight and pull her shoulders back. After 6 days of walking like that, I know she'll need some time to adjust back again. She also doesn't really use her left hand or arm when accessed. Her arm is almost glued to the side of her body, again because of the port. She asked me if we could "make a deal" that while she was in the hospital and accessed that she could walk like that, and after she was deaccessed, she would stand up straight again. I think she was tired of Dave and I always telling her to stand up straight. So I made the deal with her. She is working with occupational therapy right now. She is working on 2 birthday cards for BT (brain tumor) kids whose parents are trying to get cards from every state for their birthday, pretty cool and she is enjoying that. Physical therapy came yesterday but said she needs more OT while in the hospital because she is doing so well with physical therapy that she is really out of their league! They really focus on kids that can't walk at all, or really have trouble with very basic things like sitting up, walking, etc.

So we are all packed and set to leave. Only one "black cloud" hanging and that is Hannah has to start on her neupogen shots before we leave the hospital to help elevate her counts. The doctor automatically started her on them this time, rather than waiting for her counts to go so low that she gets an infection again. Once she heard that, she was pretty mad because she hates those shots. I will have to continue them at home, at least through our next clinic visit which is Tuesday of next week.

Thanks again for your thoughts and prayers. xoxo Kim

2 comments:

  1. Unknown said...
     

    Hi there Hannah,

    great news - you are just a little itsy bitsy tiny bit away from half way done! Well done honey, and great news about the physical therapy - you are a wonder.

    hope you had a good trip home and that you get rested up -

    Rest up and enjoy the week - looks like your teeth are coming in just in time to enjoy lots of good corn on the cob.
    Love
    Liza

  2. Anonymous said...
     

    Good Morning Hannah Sunshine & Mom,
    I pray you had a restful night at home in your own bed. There is nothing like home.
    Wonderful news that this round went fairly well for you and the medicine has helped keep your nausea at bay. Thank God. I know how annoying it is to have shots all the time and blood drawn but I know my little kindred spirit girl you will hang on. Just remember the neupron shots help keep those count levels up for your best interest.
    How great of you to make the birthday cards for other kids and how exciting for them to receive these from some many people from all over the area.
    Speaking of area, I am still trying to get you some band-aids from Hawaii.
    Keep up the great work, you are truly amazing steadfast girl.
    I send you many happy wishes and all my prayers.
    Hope to see you this week if you are feeling good.
    I Love You Much,
    Love & Blessings,
    Mrs. Baker (Lynnis)

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