Welcome

to Hannah's blog. Hannah, a happy healthy 7 year old was diagnosed on January 30, 2007 with medulloblastoma, a malignant brain tumor.

It's new

I know it's new, and lots of junk still here, but it's a new template I'm trying out. Still lots of work to do, we'll see!!

Sunday, Jan. 6, 2008

Tomorrow should prove to be a very interesting day. We have to go into clinic to have Hannah's early (7am) blood drawn to check her cortisol level. I really can't even make a prediction on whether I think it has come back up to normal levels. Hannah sleeps every day until 9:30 or 10 in the morning, so going by that is not a good sign. There is a lot more to it than that, so I'm hopeful that her adrenals have started functioning normally again. She is also due for her anti-pneumonia drug. There are two ways to get this drug, via IV or pill (two different drugs actually, but they both do the same thing). Hannah has always received it via IV since she was already accessed for chemo. Tomorrow I'm going to see if they will switch her to pills, so she won't have to endure the drug via IV, since it is especially nauseating. This will not eliminate the need, however, for her to be accessed and have her blood drawn.

For about an hour before she went to bed tonight she was VERY upset about being accessed. She repeated over and over that she "can't go and won't go" to clinic. I think it's worse since she has not been accessed in a while, then it was when it was more regular and she was expecting it.

I also wanted to give everyone an update on Hannah's Cans for Cancer campaign. Tonight I made a spreadsheet to keep track of all donations received and cans recycled, as well as all of our donations out to other organizations helping kids with cancer. To date, since we started Cans for Cancer in August of 2007, Hannah has raised$1,023.15! That money has come from bake sales, donations, can recycling, and help from so many wonderful people. That is a fantastic start to this project. Hannah and I have already talked about expanding the project, so watch for some exciting changes to come.

xoxo Kim

3 comments:

  1. Anonymous said...
     

    Hello Hannah and Kim,

    We hope that today is THE DAY when we all get good numbers! This sure is a bother, isn't it?

    Hannah, it sure isn't fun being so brave all the time. Hang in there! We are rooting on you!

    You are an amazing girl! What an accomplishment with your Cans for Cancer. Wow! Over a $1,000!

    Much love,
    Sarah and Caroline

  2. Anonymous said...
     

    Just checking in and letting you know thatI'm sending big prayers your way!

    We love you all!

    Angela

  3. Anonymous said...
     

    Wow--You have done an amazing job with your Cans for Cancer!!! Hope today goes well---I know what you mean about it being worse when the kids are not accessed for a while. They just get back to "ALMOST" a "normal" life and then they are back---oh well--hopefully they can switch you---Kaitlyn is actually on Bactrim which is a liquid 3times a week.
    Talk to you soon
    Carolyn

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