Welcome

to Hannah's blog. Hannah, a happy healthy 7 year old was diagnosed on January 30, 2007 with medulloblastoma, a malignant brain tumor.

It's new

I know it's new, and lots of junk still here, but it's a new template I'm trying out. Still lots of work to do, we'll see!!

Thursday, Jan. 17, 2008

All is pretty much status quo here. Hannah's eating does seem better at times, and at other times it's the same. Yesterday she actually asked for more chicken at dinner. I cooked some up as quickly as I could and she ate some more, much to our surprise. The girl is certainly getting her chicken in lately, which is good for protein and her body. I am buying only organic now, so no extra chemicals or supplements, only extra cost! Let's see, today she had her protein drink in the morning, followed by 2 strawberries. For lunch she had pizza sauce and cheese (in a bowl, without the pizza dough, yuck!) and half a peanut butter and jelly sandwich. She had a snack of raisins and goldfish in the afternoon, then for dinner she had some sauteed chicken, with corn on the cob. Another protein drink at night. WOW, that's a lot for her. I sure hope we see an increase in her nutritional count next week. However, this does mean she has to be accessed for the blood draw, and she is already aware of this due to her dog like hearing. She seems to hear everything I say in any other room in the house. Sometimes she yells out things while I'm on the phone and she is in the living room watching tv because she wants in on the conversation. She is always paying attention, always. They say she lost hearing at the high frequencies, but not sure if I believe that.

I did forget to report that Hannah is now sleeping in her own bed! She has slept downstairs alone for 3 nights now, only 1 of those nights did she actually stay all night by herself. Usually she calls me down at sometime during the night, and now wants to come upstairs to our bed, like old times. She is SO happy when she gets to come up. At 3 am, sometimes that's amusing and sometimes it's not! I do miss being down with her and Tod during the night, little Tod sleeps in his own cage now too. Here is Hannah showing off her OHHHMMMM! She definitely has not lost her sense of humor.

Tomorrow Hannah is headed back to school for the first time since November 2nd. I couldn't believe it when I saw that it has been that long since she has been in school, WOW! I told her she is in charge of how long she stays, depending on how she feels. She still has nausea daily, sometimes it interferes with her daily activities and sometimes not. She is excited and nervous to be going back tomorrow. Her stamina still is not great. We went to girl scouts this afternoon for the first time in a while too. From 4-5pm we were on a field trip where she spent the whole hour standing with the group. Afterwards she was saying how her legs hurt, and she isn't used to standing up for that long at one time. That is a good example of how she gets easily fatigued. We'll see what tomorrow brings, but we're excited that she is taking that step now and returning, even if only for a brief time.

ps. Ignore those posts on the blog, Colby wants you all to know that she LOVES the protein drinks, and waits all day for the next one (she only has to drink them once, in the evenings.) But watch out, that could always change (ha ha ha), love you scuba girl!!

xoxo Kim

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